The Quality of Survival (QoS) Group was formed in 2006 and is a multi-disciplinary group committed to improving QoS outcomes for children with brain tumours. It focuses on understanding and addressing cognitive, social-emotional, behavioural, and physical consequences of brain tumours in childhood, promoting best practices in research and care. The group provides a collaborative platform for all disciplines to discuss shared QoS challenges and exchange updates on research and clinical practice. 

The QoS group is open to anyone with a special interest in QoS. The group meets once per year (in person) and interim online conferences are organized during the year if needed. We benefit from a multi-disciplinary membership, including but not limited to: oncology, rehabilitation medicine, neuropsychology, endocrinology, neurology, physiotherapy, occupational therapy, speech-language therapy, nursing, and biology. Representatives from tumour-specific groups are encouraged to attend QoS meetings and to liaise with the QoS group between meetings when developing trial protocols. 

A major role of the QoS group is to support tumour-specific trial groups in developing protocols that facilitate comparison of QoS data from different countries and trials. Our aim is to ensure that we can draw robust conclusions regarding QoS in clinical trials and to facilitate the development of interventions for improved QoS after pediatric brain tumours. Further work is focused on developing standardised methods for data recording and harmonization, developing interventions to improve QoS, and ongoing evaluation of QoS elements in brain tumour clinical trial protocols. 

The QoS group has published position papers regarding data collection for children younger than 5 years old (doi: 10.1016/j.ejpn.2019.10.002) and for 5 years and over (doi: 10.1016/j.ejpn.2014.12.003).  

The QoS group is currently chaired by Debbie Hicks, Aron Onerup and Marita Partanen.